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In Emme and Me, 9-year-old Maya shares the story of her family and her life with her older sister, Emme, who has dysgenesis of the corpus callosum. Through the words of this young girl, we get a heartwarming glimpse at the ups and downs of living with a sibling who has a disability. The book was written by clinical psychologist/neuroscientist Lynn K. Paul, Ph.D. and Rachel Steiner, who is the proud sister of a brother with complete ACC. Illustrations were done by Cindy Reisenauer, an author, illustrator and teacher who has an adult son with complete ACC. -
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Help to raise awareness by having your favourite drink in our new mug. -
Rhonda Booth, PhD. February 2020. This information booklet aims to answer some of the many questions families naturally ask when a disorder of the corpus callosum is detected. Written in consultation with medical professionals and research scientists, it brings together what is currently known about the condition, how it might be caused, what the possible range of outcomes will be, and what support is available. Although primarily written for parents, the booklet will be of interest to anyone who learns that they have a disorder of the corpus callosum. Clinicians and educators will also find it a valuable resource to gain a better understanding of this rare brain condition.