NEWSLETTERS - information required

We are now actively looking for new stories, experiences, pictures, fund raising events for out next newsletter.

We are always wanting to hear from our members, so please share if you want to with your amazing stories, experiences and achievements for our next newsletter due out in the Spring,  If you have anything you would like to share with us, relevant to ACC or Aicardi Syndrome, why not email us at This email address is being protected from spambots. You need JavaScript enabled to view it. not only would we like to hear from families, but also we are always on the look out for useful information/resourses that could be of interest. We look forward to hearing from you.