APRIL 2019 NEWSLETTER

Hello everyone!
Wow these last few months have been really busy for the Committee of CORPAL. There are many exciting ideas coming through that we are hoping to develop and grow in the next few months – you will all be informed as and when they arise.

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2020 Conference postponed, Regional Events now planned.

toSadly we are unable to organise a larger and longer Conference for 2020, but we hope to re think this for 2021, so please keep checking. We are disappointed that this could not be arranged, but mainly lack of support and funding. Corpal would have liked to secure a venue and offer members subsidised fees to attend, however unfortunately for the type of venue required and the amount of members replied, we could not commit the funds from Corpal at this time. Thank you all to those who repsonded. We will keep you updated.

To replace this, we are in the process of planning Regional Meetings throughout the UK. Recently there was an event in Blackpool which was open to the public as well as members. This was a successful day run by parents of a son with ACC. Corpal was represented by some of the committee and we are very grateful to Katy and Sean Thompson and the Lancashires Light House Radio for organising a fun day.  

Saturday 14th September 2019 - SCOTLAND - Edinburgh - Family get together.

Sunday 6th October 2019 -   DEVON - Exeter - Family Get together

Midlands and the Southern Area dates will be released in the new future.

We have received some offers of help for the above get togethers which we thank you for and a committee will be in touch when they have more details...Please accept our apologies if you have not heard from us, but I can assure you we have taken note of your offer.

 

REGIONAL EVENTS

SCOTLAND - SATURDAY 14TH SEPTEMBER 2019 - EDINBURGH - more details and location to follow shortly.

More family days in the planning - Details to follow.

SOUTH WEST - SUNDAY 6TH OCTOBER 2019 -  DEVON

The Imperial, Exeter. (close to Exeter St Davids Station) 11.30am - 3pm - More details to follow.

LANCASHIRE'S LIGHTHOUSE RADIO - FUNDRAISER

DO YOU LIVE IN THE NORTH WEST OF ENGLAND?

April 12/13th  2019

Why not join Lancashire's Lighthouse Radio on 13th April 2019, The Radio station will also be going live for 24 hours from 10am on Friday.  Saturday 13th April a Fundraiser for Corpal will be held at The Blackpool Tabernacle, Springfield Road, Blackpool. Refreshments and more information on the condition and some fun and games for the children. This event will start at Midday and finish around 4pm. 

Corpal will be fully supporting them with information, T shirts to purchase, and professionals will help out where they can on questions that need to be asked. 

If you need more information please visit their website www.lancashireslighthouseradio.co.uk or This email address is being protected from spambots. You need JavaScript enabled to view it.

 

 

 

 

 

FUNDRAISING EVENTS 2019

We are delighted that we have some very active members who would like to raise funds for Corpal in a way of taking part in events as follows.

January 2019

OVER £4,000 RAISED FOR CORPAL

AT THE

5K Run  in Crystal Palace Park on the 13 January

A BIG THANK YOU TO

Lisa, Minnie, Lee and Autumn who took part in the event. 

April 2019 

Do you live in the North West of England?? why not join 

Lancashire's Lighthouse Radio who are holding a  Corpal Fundraiser event on Saturday 13th April at

The Blackpool Tabernacle, Springfield Road, Blackpool.

Also the Radio Station will be going live for 24hrs from 10am on Friday 12th April. 

Well done to Sean and Katy for organising a great awareness of ACC event and raising over £170.00. 

Their main aim is to raise awareness and funds for Corpal who support those parents, carers and children who are affected by a disorder of the Corpus Callosum or Aicardi Syndrome.

Why not join them for some fun and games and also to meet other families who are affected by ACC.

Virgin London Marathon

Leah Ozdemli (member) will be running in the London Marathon this year on the 28th April, her just giving page is  

https://www.justgiving.com/fundraising/leah-ozdemli  

Leah is working very hard towards this event please visit her Just Giving page to find out why.

A BIG THANK YOU TO LEAH for raising over £4,000 in taking part in running the Virgin London Marathon... and amazing achievement and a very grateful Charity. 

May 2019

Vitality London 10,000 (10k run)

We now have 4 runners in this event Ryan, Alex, Ben and Ryan.... Please visit their Just Giving page to learn more https://www.justgiving.com/fundraising/lilah-corpal