NEWSLETTER APRIL 2018

Hello everyone Included in this issue are more wonderful stories from our ACC families as well as information for our forthcoming AGM. I hope as many of you as possible are able to attend. It's a fantastic day and well worth attending if you can make it. Read More

CORTICAL CONNECTIONS SYMPOSIUM - 28 JUNE 2018 - USA

CORTICAL CONNECTIONS SYMPOSIUM         
June 28,  8:30am - 5:30pmLogo_Full.png
Westin South Coast Plaza
 
A special event hosted by the International Consortium for the Corpus Callosum and Cerebral Connectivity (IRC5) in collaboration with the National Organization for Disorders of the Corpus Callosum (NODCC).
 
The Cortical Connections Symposium is a scientific meeting for physicians and clinical professionals who treat individuals with developmental malformations of cortical connectivity (specifically the corpus callosum) and researchers studying these conditions. Individuals with corpus callosum disorders and their family members are also welcome to attend.   (Please note that the presentations will be quite technical, as the program was designed for physicians, clinical professionals and trainees in these fields. Several of the symposium speakers will provide less-technical presentations at the DCC Conference.)
 
The program consists of a series of brief presentations arranged in general progression from cellular and molecular studies, to neural diagnostics in humans, and finally to higher-level cognitive and behavioral issues related to malformation of cortical connectivity.  Speakers include scientists and clinicians from around the world; leading experts from the fields of developmental neuroscience, laboratory genetics, clinical genetics, paediatric neurology, neuroimaging and neuropsychology. 
  
Registration for this event is required and is separate from DCC Conference registration.  Register now! (https://www.eventbrite.com/e/cortical-connections-symposium-2018-tickets-42957762825).
 
For more information visit the meeting page at IRC5.org (http://irc5.org/cortical_connections/). 

CORPAL FAMILY DAY/AGM/SPEAKERS - SATURDAY 12TH MAY 2018

SATURDAY 12TH MAY 2018  9.15am - 4pm - Refreshments available from 9am.

If you would like to attend this Family Day with Speakers, please see all details under the 'INFORMATION PACK' icon on the Website.  

Touchbase Centre, Premier Inn, Bath Road, Hounslow, London TW6.

Buffet Lunch

Entertainer for the children in the morning 9.45am - 12.45pm (Time for parents to listen to the speakers while your children are being entertained.

We are delighted that Dr Lynn K Paul from National Disorders of the Corpus Callosum will be speaking. 

Professor Rajat Gupta - Paediatric Neurologist - Birmingham Childrens Hospital. 

Beverley Searle from the Charity 'Unique'  www.rarechromo.co.uk will joining us for the day to answer questions on Rare Chromosomes

RAFFLE/TOMBOLA  if you have any unwanted gifts, why not bring them along to help with the prizes to help raise funds for Corpal.

Contact Premier Inn, Bath Road, directly  if you are interested in staying overnight.

Details will be updated when we have more information.

NEWSLETTERS - information required

We are now actively looking for new stories, experiences, pictures, fund raising events for out next newsletter.

We are always wanting to hear from our members, so please share if you want to with your amazing stories, experiences and achievements for our next newsletter due out in the Spring,  If you have anything you would like to share with us, relevant to ACC or Aicardi Syndrome, why not email us at This email address is being protected from spambots. You need JavaScript enabled to view it. not only would we like to hear from families, but also we are always on the look out for useful information/resourses that could be of interest. We look forward to hearing from you.