Virgin London Marathon 2018


Sadly Jack has had to withdraw from the London Marathon for 2018 due a knee injury while training.  We know that Jack is very disappointed and would like to thank him for all his hard work in his training for this event and wish him a very speedy recovery.

Due to the timescale unfortunately, we are not able to replace Jacks entry in this years Marathon, however our ballot place will be carried forward to next year. 

More details for the 2019 Event later this year.


If you would like to support Corpal in the London Marathon 2018 to be held on April 22nd 2018, please visit Jacks Just Giving Page at   

Jack has already run the half Marathon at Silverstone which was held in March last year for Corpal.

Please support Jack. Thank you


Help required for our SPRING NEWSLETTER

If you have any stories/photos/resources that may help others who are affected by Agenesis of the Corpus Callosum or Aicardi Syndrome and are happy for it to be included in our next Newsletter,  please send an email to This email address is being protected from spambots. You need JavaScript enabled to view it.or This email address is being protected from spambots. You need JavaScript enabled to view it. 

Spring Newsletter due to be published and available by end of March.

Many thanks.


THANK YOU - Northern Meeting

Thank you to everyone for making the Northern meeting a very special day which was held at Ryecroft Hall, Manchester on Saturday 20th 2018.

This was an informal day for families to meet other Corpal members and share experinces. The feedback was very encouraging, with one of the quotes being " Fabulous support and great to meet other families after so many years of being alone"

The children were entertained in the afternoon by  'Joy Melody' who was amazing and did some fabulous balloon animals for the children to take home plus plate spinning and magic tricks.  A raffle followed with some lovely donated prizes. 

Due to the success, we hope to plan more regional meetings in the future. If you are interested please email us at This email address is being protected from spambots. You need JavaScript enabled to view it. with your area.



SATURDAY 12TH MAY 2018  9.15am - 4pm

If you would like to attend this Family Day with Speakers, please see all details under the 'INFORMATION PACK' icon on the Website.  

Touchbase Centre, Premier Inn, Bath Road, Heathrow.

Timings to be confirmed, but normally runs from around 10am to 4pm, depending on speakers

Buffet Lunch

Entertainer for the children in the afternoon,

Update -

We are delighted that Dr Lynn K Paul from National Disorders of the Corpus Callosum will be speaking.

Professor Rajat Gupta - Paediatric Neurologist - Birmingham Childrens Hospital.

Beverley Searle from the Charity 'Unique' will joining us for the day to answer questions on Rare Chromosomes

More details on further visitors/professionals to follow nearer the time.

Contact Premier Inn, Bath Road, directly  if you are interested in staying overnight.

Details will be updated when we have more information.